Pesg PNH diagnosis, follow-up and treatment guidelines

PNH Education and Study Group ( PESG) have been established in December 2013 as a non-profit, independent, medical organization www.pesg.org. Paroxysmal Nocturnal Hemoglobinuria ( PNH) is a multi-systemic disease that should be treated with a multidisciplinary approach. Patients may apply to the clinics other than the hematology due to variability and diversity of clinical findings which lower the rate of diagnosis due to low awareness about PNH. PNH might be overlooked and diagnosis might be delayed. Regarding these, PESG was established with the collaboration of Immunology, Cardiology, Thorax Diseases ( Pulmonology), Neurology, Gastroenterology, General Surgery and Urology specialists in addition to hematologists dealing with PNH. The PESG study group aims to increase the awareness about PNH, including training activities about PNH, strengthening the relations between clinics and planning of clinical studies as a goal. It is the first professional organization focusing on PNH, in Turkey. In this guideline, we want to facilitate the diagnosis attributes of physicians from all specializations that deal with PNH and its systemic complications. One can perceive this as a tailor made guideline of international guidelines but not a compilation.

Yazar Sahin, Fahri
Akay, Olga Meltem
Ayer, Mesut
Dal, Mehmet Sinan
Ertop, Sehmus
Ilhan, Osman
Karakus, Volkan
Yayın Türü Review
Tek Biçim Adres https://hdl.handle.net/20.500.12628/3092
Koleksiyonlar Araştırma Çıktıları | WoS | Scopus | TR-Dizin | PubMed | SOBİAD
PubMed İndeksli Yayınlar Koleksiyonu
WoS İndeksli Yayınlar Koleksiyonu
Sayfalar 19 - 27
Yayın Yılı 2016
Eser Adı
[dc.title]
Pesg PNH diagnosis, follow-up and treatment guidelines
Yayın Yılı
[dc.date.issued]
2016
Yayıncı
[dc.publisher]
E-CENTURY PUBLISHING CORP
Yayın Türü
[dc.type]
review
Açıklama
[dc.description]
WOS: 000388367600001
Açıklama
[dc.description]
PubMed: 27570707
Özet
[dc.description.abstract]
PNH Education and Study Group ( PESG) have been established in December 2013 as a non-profit, independent, medical organization www.pesg.org. Paroxysmal Nocturnal Hemoglobinuria ( PNH) is a multi-systemic disease that should be treated with a multidisciplinary approach. Patients may apply to the clinics other than the hematology due to variability and diversity of clinical findings which lower the rate of diagnosis due to low awareness about PNH. PNH might be overlooked and diagnosis might be delayed. Regarding these, PESG was established with the collaboration of Immunology, Cardiology, Thorax Diseases ( Pulmonology), Neurology, Gastroenterology, General Surgery and Urology specialists in addition to hematologists dealing with PNH. The PESG study group aims to increase the awareness about PNH, including training activities about PNH, strengthening the relations between clinics and planning of clinical studies as a goal. It is the first professional organization focusing on PNH, in Turkey. In this guideline, we want to facilitate the diagnosis attributes of physicians from all specializations that deal with PNH and its systemic complications. One can perceive this as a tailor made guideline of international guidelines but not a compilation.
Tek Biçim Adres
[dc.identifier.uri]
https://hdl.handle.net/20.500.12628/3092
Yayın Dili
[dc.language.iso]
eng
Yazar
[dc.contributor.author]
Sahin, Fahri
Yazar
[dc.contributor.author]
Akay, Olga Meltem
Yazar
[dc.contributor.author]
Ayer, Mesut
Yazar
[dc.contributor.author]
Dal, Mehmet Sinan
Yazar
[dc.contributor.author]
Ertop, Sehmus
Yazar
[dc.contributor.author]
Ilhan, Osman
Yazar
[dc.contributor.author]
Karakus, Volkan
Haklar
[dc.rights]
info:eu-repo/semantics/closedAccess
İlk Sayfa Sayısı
[dc.identifier.startpage]
19
Son Sayfa Sayısı
[dc.identifier.endpage]
27
Açık Erişim Tarihi
[dc.date.available]
2019-12-23
Görüntülenme Sayısı ( Şehir )
Görüntülenme Sayısı ( Ülke )
Görüntülenme Sayısı ( Zaman Dağılımı )
Görüntülenme
11
09.12.2022 tarihinden bu yana
İndirme
1
09.12.2022 tarihinden bu yana
Son Erişim Tarihi
06 Şubat 2024 23:11
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