Economic and psychosocial problems experienced by pediatric with cancer patients and their families during the treatment and follow-up process

Aim: To identify the psychosocial and economic problems of the pediatric patients with cancer who were treated at the Dr. Sami Ulus Obstetrics and Gynecology and Child Health and Diseases Training and Research Hospital's Pediatric Oncology Department and their relatives during this process. Material and Methods: We interviewed a total of 100 patients who were treated at Dr. Sami Ulus Obstetrics and Gynecology and Child Health and Diseases Hospital's Pediatric Oncology Department between 1996 and 2015, and were now followed up without treatment and their relatives using survey questions on the psychosocial and economic problems they experienced. Results: Most of patients were from provinces outside Ankara. The average monthly income was below the level that would meet the family needs in 80% of the families and only 16% had extra income. Additional economic support had been received by 93% of the families in the patient group. Twenty-five families (25%) had been forced to sell property during the treatment. Forty-nine (49%) families had borrowed money from acquaintances and relatives or had taken out a bank loan. Serious psychological problems were experienced during and after the treatment by 46% of the mothers; 41% of the families had used religious procedures more commonly during the treatment period to cope with the psychological problems. Education was subject to a 1-2 year pause in 83% of the patients. Conclusion: Childhood-age patients with cancer and their families experience significant psychosocial and economic problems during and after the treatment process. Providing medical treatment and psychosocial support in harmony is an important factor that increases the success of cancer treatment. The patient and the family will require psychosocial support mechanisms throughout life, starting from the moment they face the disease. Developing national social support programs and legal regulations to form a basis for such programs are required in our country.

Yazar Bozkurt, Ceyhun
Ugurlu, Zilan
Tanyildiz, Hikmet Gulsah
Yesil, Sule
Kiraz, Hasim
Toprak, Sule
Yuksek, Nazmiye
Yayın Türü Article
Tek Biçim Adres https://hdl.handle.net/20.500.12628/2430
Tek Biçim Adres 10.14744/TurkPediatriArs.2019.11129
Konu Başlıkları Childhood age cancers
psychosocial problems
social support
Koleksiyonlar Araştırma Çıktıları | WoS | Scopus | TR-Dizin | PubMed | SOBİAD
PubMed İndeksli Yayınlar Koleksiyonu
WoS İndeksli Yayınlar Koleksiyonu
Dergi Adı TURK PEDIATRI ARSIVI-TURKISH ARCHIVES OF PEDIATRICS
Dergi Cilt Bilgisi 54
Dergi Sayısı 1
Sayfalar 42 - 46
Yayın Yılı 2019
Eser Adı
[dc.title]
Economic and psychosocial problems experienced by pediatric with cancer patients and their families during the treatment and follow-up process
Yazar
[dc.contributor.author]
Bozkurt, Ceyhun
Yazar
[dc.contributor.author]
Ugurlu, Zilan
Yazar
[dc.contributor.author]
Tanyildiz, Hikmet Gulsah
Yazar
[dc.contributor.author]
Yesil, Sule
Yazar
[dc.contributor.author]
Kiraz, Hasim
Yazar
[dc.contributor.author]
Toprak, Sule
Yazar
[dc.contributor.author]
Yuksek, Nazmiye
Yayın Yılı
[dc.date.issued]
2019
Yayıncı
[dc.publisher]
TURKISH PEDIATRICS ASSOC
Yayın Türü
[dc.type]
article
Özet
[dc.description.abstract]
Aim: To identify the psychosocial and economic problems of the pediatric patients with cancer who were treated at the Dr. Sami Ulus Obstetrics and Gynecology and Child Health and Diseases Training and Research Hospital's Pediatric Oncology Department and their relatives during this process. Material and Methods: We interviewed a total of 100 patients who were treated at Dr. Sami Ulus Obstetrics and Gynecology and Child Health and Diseases Hospital's Pediatric Oncology Department between 1996 and 2015, and were now followed up without treatment and their relatives using survey questions on the psychosocial and economic problems they experienced. Results: Most of patients were from provinces outside Ankara. The average monthly income was below the level that would meet the family needs in 80% of the families and only 16% had extra income. Additional economic support had been received by 93% of the families in the patient group. Twenty-five families (25%) had been forced to sell property during the treatment. Forty-nine (49%) families had borrowed money from acquaintances and relatives or had taken out a bank loan. Serious psychological problems were experienced during and after the treatment by 46% of the mothers; 41% of the families had used religious procedures more commonly during the treatment period to cope with the psychological problems. Education was subject to a 1-2 year pause in 83% of the patients. Conclusion: Childhood-age patients with cancer and their families experience significant psychosocial and economic problems during and after the treatment process. Providing medical treatment and psychosocial support in harmony is an important factor that increases the success of cancer treatment. The patient and the family will require psychosocial support mechanisms throughout life, starting from the moment they face the disease. Developing national social support programs and legal regulations to form a basis for such programs are required in our country.
Açıklama
[dc.description]
WOS: 000471597800008
Açıklama
[dc.description]
PubMed: 31217707
Kayıt Giriş Tarihi
[dc.date.accessioned]
2019-12-23
Açık Erişim Tarihi
[dc.date.available]
2019-12-23
Yayın Dili
[dc.language.iso]
eng
Konu Başlıkları
[dc.subject]
Childhood age cancers
Konu Başlıkları
[dc.subject]
psychosocial problems
Konu Başlıkları
[dc.subject]
social support
Haklar
[dc.rights]
info:eu-repo/semantics/openAccess
ISSN
[dc.identifier.issn]
1306-0015
ISSN
[dc.identifier.issn]
1308-6278
İlk Sayfa Sayısı
[dc.identifier.startpage]
42
Son Sayfa Sayısı
[dc.identifier.endpage]
46
Dergi Adı
[dc.relation.journal]
TURK PEDIATRI ARSIVI-TURKISH ARCHIVES OF PEDIATRICS
Dergi Sayısı
[dc.identifier.issue]
1
Dergi Cilt Bilgisi
[dc.identifier.volume]
54
Tek Biçim Adres
[dc.identifier.uri]
https://dx.doi.org/10.14744/TurkPediatriArs.2019.11129
Tek Biçim Adres
[dc.identifier.uri]
https://hdl.handle.net/20.500.12628/2430
Görüntülenme Sayısı ( Şehir )
Görüntülenme Sayısı ( Ülke )
Görüntülenme Sayısı ( Zaman Dağılımı )
Görüntülenme
4
09.12.2022 tarihinden bu yana
İndirme
1
09.12.2022 tarihinden bu yana
Son Erişim Tarihi
18 Ocak 2024 15:25
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Tıklayınız
treatment families psychosocial during patients problems economic support relatives cancer income patient programs process family experienced Department psychological treated Obstetrics Gynecology Oncology Diseases Health Hospital Pediatric mothers Childhood-age Conclusion experience procedures Education country commonly subject
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